Australian Hand Difference Register
For many years, Aussie Hands advocated for the establishment of a register, and played an integral part in the development of the Australian Hand Difference Register. The register commenced in August 2017 and is recording data of children born with a hand difference and/or arm difference.
The AHDR aims to:
- find out how many children are born with a hand/arm difference in Australia
- learn more about possible causes and risk factors
- gain information to help plan services
- identify possible participants for future research
- identify the effects of hand differences on children
- decide how best to manage hand differences
The register is managed by researchers at the Murdoch Children’s Research Institute, which is located at the Royal Children’s Hospital in Melbourne. Currently children and families are recruited from most states and territories around Australia.