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External Resources

External Resources

We have collated these external resources for you from interviews and workshops with Aussie Hands members, health professionals and government departments plus other research as a quick reference.

Expecting & New Parents

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Support Networks

The Australian Parenting Website

Limbs4Kids

Lucky Fin Project

Limb Difference Clinics

The Royal Melbourne Children’s Hospital

Queensland Children’s Hospital

Sydney Children’s Hospital

Perth Children’s Hospital

Royal Adelaide Hospital

Mental Wellbeing

How to Contact a Social Worker

Better Access Rebates

Beyond Blue

headspace

Kids Helpline

Health Professionals

Australian Hand Therapy Association

Australian Physiotherapy Association

Occupational Therapy Australia

Australian Orthotic Prosthetic Association

Arm Dynamics

National Disability Insurance Service (NDIS)

References

Barak, A., Boniel-Nissim, M., & Suler, J. (2008). Fostering empowerment in online support groups. Computers in Human Behavior, 24(5), 1867–1883. https://doi.org/10.1016/j.chb.2008.02.004

 

Giele, H., Giele, C., Bower, C., & Allison, M. (2001). The incidence and epidemiology of congenital upper limb anomalies: A total population study. The Journal of Hand Surgery, 26(4), 628–634. https://doi.org/10.1053/jhsu.2001.26121

 

McLaughlin, M., Lisenby, S., Sharma, S., & Modcrin, A. (2018, June 28). Congenital Upper Limb Deficiency –. PM&R KnowledgeNow. https://now.aapmr.org/congenital-upper-limb-deficiency/

 

The Australian Hand Difference Register. (2020). AHDR Annual Report 2020. https://www.mcri.edu.au/sites/default/files/media/ahdr_annual_report_2020_final.pdf

School Age

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Born Just Right

Children’s books about hand difference

Little Miss Jessica Goes to School

What Happened to Your Hand

Different is Awesome

I am Sheriuana, Book 1: We Are Beautiful

Amazing

It’s Okay to be Different

The Gift of Grace

Airick Flies High

5 Fingers and 10 Toes

Look What Kate Can Do

Children’s cartoons and films about hand difference

Maya met Andy

Finding Nemo

Luca (2021)

Reasonable Adjustments

Australian Government

Education Services Australia – Reasonable Adjustments

Starting High School

Raising Children – Starting secondary school

ReachOut – Tips for starting high school

Dealing With Bullying

Victoria State Government Department of Education and Training Bully Stoppers 

eSafetyCommissioner: Cyberbulling

BULLYING.NO WAY!

Kids Helpline

Limbs4Kids: Combatting bullying

Reach: Dealing with issues at school

Self-Care & Independence 

Occupational Therapy Australia 

NDIS 

Independent Living Centres Australia  

Hickies – slip on shoes while your child learns to tie shoe laces

Hannah’s One-Handed Shoe-Tying Technique (video)

My Special Hand – Zipping our coat (video)

Developing a Pencil Grip Department of Occupational Therapy, Royal Children’s Hospital Melbourne 

One-handed keyboards making schoolwork easier

Ability Technology is a non-profit organisation based in Sydney, Newcastle and Canberra, Australia available to assist people with a disability with the use of computer and home control technology. 

Spectronics inclusive learning technologies is a Brisbane based company which supplies special needs software and technology. 

Five Finger Typist is a typing tutor for people who want to learn to type with one hand. It teaches the accepted keyboarding technique for one-handed touch typing on the standard (QWERTY) keyboard. Developed by SoftDawn Software, a Melbourne based company. 

Australian Ruler Co. – for non-slip safety rulers

FREE 3D Hands – a charity based in Australia using 3D printing technology to design and manufacture hands and assistive devices for free.

A Helping hand: Building life-changing prosthetics (ABC Catalyst) (video)

Active Hands  – a source for gripping aids and other products for reduced hand function

Arm Dynamicsan upper limb prosthetic care provider

Association for Children with a Disability supports all families in Victoria with children with disability aged 0 to 18 years old.  

Developmental Occupational Therapy (WA) – Early Skills for Living and Learning Handouts 

Bionic arm changes girl’s life (video)

 

References

Andersson, G. B., Gillberg, C., Fernell, E., Johansson, M., & Nachemson, A. (2011). Children with surgically corrected hand deformities and upper limb deficiencies: self-concept and psychological well-being. Journal of Hand Surgery (European Volume)36(9), 795–801. https://doi.org/10.1177/1753193411412869 

Bunker, L. K. (1991). The Role of Play and Motor Skill Development in Building Children’s Self-Confidence and Self-Esteem. The Elementary School Journal91(5), 467–471. https://doi.org/10.1086/461669 

 

McDougall, L., Kennedy, J., Coombs, C., & Penington, A. (2020). The psychosocial impact of congenital hand and upper limb differences on children: a qualitative study. Journal of Hand Surgery (European Volume)46(4), 391–397. https://doi.org/10.1177/1753193420967527 

 

Meyer, A., & Genareo, V. (2021). “Does Your Arm Hurt?” A Content Analysis of Upper Limb

Differences in Children’s Books. Michigan Reading Journal, 53(3). https://scholarworks.gvsu.edu/mrj/vol53/iss3/8

 

Vasluian, E., de Jong, I. G. M., Janssen, W. G. M., Poelma, M. J., van Wijk, I., Reinders-Messelink, H. A., & van der Sluis, C. K. (2013). Opinions of Youngsters with Congenital Below-Elbow Deficiency, and Those of Their Parents and Professionals Concerning Prosthetic Use and Rehabilitation Treatment. PLoS ONE8(6), e67101. https://doi.org/10.1371/journal.pone.0067101